Patient Registries and Cohort Studies

Patient Registries and Cohort Studies

An increased desire to transition from studies designed to meet a single purpose, to reusable data infrastructures that fulfill multiple purposes, has led to a rise in disease and product registries. The availability of electronic health record (EHR) data, and their potential to greatly reduce costs and increase clinical data granularity, has further increased the popularity of these registries in recent years.
Patient Registries and Cohort Studies Research

Registries help with understand the natural history of a disease, influence the formation of clinical programs, and aid in real-world safety and effectiveness.

In the early development phase, there is increasing reliance on registries to help understand the natural history of a disease and influence clinical programs. In the post-approval stage, registries are being leveraged to measure real-world safety and effectiveness, as well as to uncover new opportunities not evaluated during clinical trials. 

The GARDIAN Registry- A new, deeper view into neuronopathic Gaucher patients

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Client Results

Natural history

Understand the progression of disease while identifying potential subpopulations and endpoints which matter.

Predict outcomes

Determine with confidence, patient characteristics and treatment patterns which drive better health outcomes.

Complex viewpoints

Understand what impacts clinical, humanistic and economic burden.

Clinical trial data

Measure compound effectiveness and safety as seen in clinical trials in real world populations.

Long-term view

Ascertain long-term treatment outcomes and see all possibilities clearly.